Virtual Meeting Series 2025
with the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB)

Published by ICSEB at 1 April, 2025

Sponsored by the Chiari & Scoliosis & Syringomyelia Foundation (CSSF)

We are pleased to announce the launch of a new series of virtual meetings in 2025 with the Institut Chiari & Siringomielia & Escoliosis de Barcelona. These sessions aim to address the doubts and difficulties faced by patients with Filum Disease and related conditions.

Each meeting will feature ICSEB specialists who will provide clear explanations on key topics. Participants are welcome to raise general questions in areas such as medical care and treatment options, diagnosis and follow-up protocols, travel planning and logistics, Scheduling and organisational procedures, and more.

Who can attend:

• Patients and family members
• Individuals diagnosed with Arnold-Chiari I, Syringomyelia, idiopathic Scoliosis, or other conditions related to Filum Disease and the Neuro-Cranio-vertebral Syndrome
• Those in contact with ICSEB or affiliated patient organisations

To ensure everyone has the opportunity to participate, each session will be limited to a maximum of 12 participants.

Questions can be submitted in advance via the registration form to help organise the discussion.

After you have submitted the registration form, we will follow up by email to confirm your participation and share the connection details.

For the first time, sessions will also be held specifically for the English-speaking audience. These are organised in collaboration with Unbound Path NGO, and we are pleased to welcome representatives from the organization and other patient advocates, who will share their valuable insight and experience from a patient point of view.

The upcoming sessions will take place on:

• Monday, 14 April
• Tuesday, 15 April
• Wednesday, 16 April

Time: 16:00 (CEST – Central European Summer Time)
Duration: 1 hour